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Saturday, 22 April 2017

Dr Myhill is campaigning for CFS/ME patients


Dr Myhill is a well known name amongst the CFS/ME community thanks to her book "It's mitochondria not hypochondria" which talks about some of the physical causes of the condition. She presents the science behind the theory that those with CFS don't have properly functioning mitochondria, which leads to us being unable to produce energy properly. 



Personally, I never had mine measured as it was too expensive and Dr Myhill can only take on a certain number of patients at any one time. But, I did follow a lot of the advice she recommends - changes to diet and taking a number of different supplements which my body needs in order to produce energy. This made a big difference to my health, it was a turning point in my recovery combined with the hydrotherapy I was offered. I'm very much of the opinion that what works for one person may not work for everyone, but this was something I could try without fearing I'd do further damage. I don't follow it strictly anymore although if I'm crashing I do to help me recover faster.

Saturday, 15 April 2017

If the label fits


I run a support network at work for employees with conditions where chronic fatigue is a major symptom. We've got 93 members now, mostly with CFS/ME, some with MS, some with EDS and about 15 other conditions. Every month we get together (virtually speaking - we're spread out all over the country!) and talk about what we're working on as a group, and chat about issues that affect us, share advice and generally support one another. It's the absolute best bit of my job, I love it, and love how we make a difference to each other's lives.


Friday, 7 April 2017

What personality type are you?


There’s always loads of quizzes going round social media to tell you important stuff like which character from a TV programme you’re most like, or which country you’re destined to live in or even what your coffee choice says about you. But there’s also a few around which are based on more serious psychological theories.

Take Myers-Briggs for example – in my experience that’s the one that is most commonly done in work places, helping managers understand the makeup of their team and how to relate to them.

This week a colleague sent me a link to a free Myers-Briggs type test – you can find it here: https://www.16personalities.com/articles/our-theory Its based on a combination of Myers-Briggs Type Indicators and trait-based theories. This test says there are 16 different personality types, broadly described as analysts, diplomats, sentinels and explorers. I expected to come out as one of the analyst types – that’s been my job for most of the past 15 years so it’s a logical conclusion to draw!

Saturday, 1 April 2017

Things I've loved: March 2017

March 2017 was a big month for me, finally launching the blog I've been thinking about writing for the last few years. Here's a few of the other things I've loved this month:



1.       Gala Darling’s #marchismagical challenge
If you follow me on Instagram you’ll know I’ve been participating in Gala Darling’s photo challenge “March is Magical” It’s all about getting excited about the start of spring and generally brightening up Instagram with loads of happiness and love. Check out my posts HERE

Tuesday, 28 March 2017

Health Hampers


Health Hampers are a fairly new company, run by Lucie Bryan. Lucie suffered with CFS/ME, which she’s managed to recover from. During this time she discovered the importance of a healthy diet. She works with Juliet Schaffer who is a Registered Nutritional Therapist to make sure everything that goes into their hampers is free from gluten, dairy, refined sugar and is suitable for vegans. The hampers include things like raw chocolate, organic teas, treats and snacks. Each hamper costs less than £20 and is available as a one off gift, or as a monthly subscription. I was gifted a box at Christmas from my parents who had met Lucie at a market in Harrogate, and since then I’ve had 2 subscription boxes courtesy of my Dad! It’s a great way to try out different products you might not ordinarily buy yourself, and I’ve found several of my favourites in my local health food shop now too.

Tuesday, 21 March 2017

Inspiration




Since I started having health issues a few years ago I’ve really discovered the positive side of social media. I’ve found a community of people, some with same conditions as me, some with totally different problems. In each group I’ve met people who’ve taught me lots, whether they know it or not!

Hydrotheapy and me


One of the treatments I had the chance to try was hydrotherapy. I’d been referred to rheumatology following a positive ANA blood test, and the consultant I saw was brilliant and wanted to do whatever she could to help me. She referred me to the physiotherapy team based in the rheumatology department and I met up with the head therapist to talk through my symptoms and the problems I was having with movement. She recommended hydrotherapy and talked about graded exercise therapy.

Now, I know that’s a pretty controversial treatment for a whole variety of reasons. I’ve read many stories about people becoming more ill as a result of trying it. But the things the physio was saying made a lot of sense. She didn’t just talk about walking and very slowly increasing the distance or time spent leaving no energy for anything else - she included all the different activities you might want or need to do. She told me to always listen to my body and only increase when I was stable with a level of activity. The activity wasn’t just walking, it was normal things like washing your hair or cooking. It was all about getting the balance right and prioritising important daily tasks over walking or other exercise.
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